Showing posts with label Cranial Remolding Band. Show all posts
Showing posts with label Cranial Remolding Band. Show all posts

Monday, June 1, 2015

1st Avenger Birthday Party

For Ansel's 1st birthday, we went with a 1st Avenger Party theme. It just seemed to fit since he was stuck in his helmet for half of his first year anyways! :) I had fun with a lot of the details, from the invites to the scrapbook table to the cupcakes. It was awesome to have lots of family come too!

1st Avenger Invites                                       Scrapbook Table  

 Drink Table

Food Area

Treat Table






 Photo Booth


Saturday, January 10, 2015

8 Months Old!

Wow, I can't believe that Ansel is 8 months old tomorrow. It goes so fast, but I love seeing him grow up. It is absolutely fascinating to watch his little self get bigger, reach higher, smile broader, snuggle deeper. What a blessing!

After our meeting with the neuro-specialist, we mutually agreed that his torticollis was much improved and we did not need physical therapy any more. Of course we will still do therapy stretches and exercises at home, but will not be going to the doctor for therapy. (This will save a pretty penny at $100 a pop!) He's doing great developmentally, rolling, reaching, sitting up (when placed in a sitting position), picking up small objects, looking towards sounds, smiling, giggling, and saying "mama" and "dada" at random. It's so funny because he won't stay on his tummy for long before he is rolling across the room. He has also shown signs of wanting to push up to his knees in a crawling position, so I think that will be starting in the next month or so!!

Ansel is still breastfeeding four times a day, but eats solids at lunch and dinner. Lunch is usually rice or oatmeal with a fruit or veggie. Dinner is a kid-friendly version of what we are having. You should have seen him scarfing down pasta and sauce last night. He sure loves his food!

I continued to push his bedtime back little by little, and now he sleeps 11 1/2 to 12 hours. He's in bed at 7:30 PM and sleeps until 7:30 PM on weekends. During the week we usually have to load up to go to the sitters a little after 7:00. Still, what a great chunk of time! His morning nap is about an hour and afternoon naps are around 2 hours.

Since Justin has a Captain America frisbee/shield, I had to do some cute pictures. Here they are!




Saturday, January 3, 2015

Week 6 in the Cranial Remolding Helmet for Plagiocephaly

 Ansel has already worn the cranial remolding helmet for his plagiocephaly for six weeks! We are already seeing drastic improvements. In fact, if it did not improve any more, I think I could be content with it. (Except for his ear placement- more on that later) The back left of his head doesn't feel or look so flat anymore. Looking from above, we already see the parallelogram shape coming back into a circle. Guess it was worth the money!! :)
On Monday this week, Ansel was a little fussy in the morning. Usually we leave the helmet on all day until we clean it in the evening, but I decided to take it off anyway. To my chagrin, he had a "hotspot" as they call it. The skin looked like a bright red side burn and close to blistering. See below.  I decided I wasn't putting it back on until we figured it out. I gave it that day to air out, but when it was still red on Tuesday morning (even though the helmet had been off a whole day) I called the Hangar Clinic and they got him in right away. They shaved out some more of the foam on the left, and we put it back on. By the afternoon the skin just looked dry and a little flaky from whatever reaction it had. They also suggested using cornstarch if it seemed to be rubbing again.


I keep trying to figure out what caused the hot spot. Did he sleep on it and the extra sweat/no air irritate it? Did we not get that part clean enough in the daily wash? Was it too small because of a growth spurt? We still aren't sure, but I'm glad he's not having any more issues with the hot spot.

However, his head does seem dry, somewhat like the cradle cap that he had around a month old. We tried putting Aveeno baby lotion on his head as recommended by the specialist, but his hair is so long it just seemed like a goopy mess. It's kinda hard to rub lotion through hair, ya know? Then we tried to let it "dry out" before the helmet went on, but his hair still had the lotion in it. I don't know, I'm still not sure it was effective anyway. I just feel bad when he reaches up like he wants to scratch his head...poor baby. Tonight I just scrubbed it really good in the bath and I hope that helps. Perhaps it's just the dry winter weather.

His ears worry me too. They are still not aligned. I hope as his head keeps shifting they will move more into place. At least they are even horizontally if you are looking at him from the front. It's really just when you look at him from above that you notice one ear is closer to his eye than another.

Hopefully we only have to wear the helmet another two months or so, at least during the day when we go out. Overall people just ignore it, and those who do say something aren't rude. It's funny, actually, because they either think I'm trying to dress him up like a football player, or they recognize the Captain America logo. But they aren't rude so it doesn't bother me too much. I'm definitely looking forward to when he doesn't have to wear it though!! The whole ordeal is really an issue of me trusting God. And also realizing that maybe I put too much stock in a "normal" appearance... As the Bible says, "Man looks at the outward appearance, but God looks at the heart."

Monday, November 24, 2014

Week One of the Cranial Remolding Band (aka Helmet)

Ansel just finished his first week of wearing his cranial remolding band, aka helmet, and it's going well. Overall he's a pretty chill baby anyway, and he eased into the helmet without a problem. Over the past week, he gradually built up his time wearing the helmet until he was wearing all 23 hours a day. Day one was one hour on, one hour off. Day two was two hours on, one hour off, and so on for the rest of the week until he wore it all day. The one hour that we take it off is the hour that we clean it with a mild soap and let it dry out. He hasn't acted like it is hindering him or getting in the way, and continues to play, smile, and eat normally, although his head has been a little sweaty. The specialists say that will go away after a few weeks as his head adjusts to having it on. I am just glad that he is wearing it in the winter, because he is hot-blooded, and I bet he would be sweating like crazy if he had it in the summer.

I was concerned with being able to breastfeed with the helmet. It's not very large, maybe a 1/2 inch thick, but is difficult to nurse in the cradle hold. When I'm home, it's easy enough to nurse side-lying on the bed with the helmet on (hello, naptime after work for momma!) but I just take it off to nurse if he is nursing in the cradle hold. I check with the doctor today about that and he said it was just fine to take it off for that 20-30 minutes when I need to nurse. It's just now that I've gotten the hang of nursing, I don't really want to give it up. Plus, of course, I know it's better for Ansel and cheaper too!

He continues to have therapy for the torticollis once a week, plus we do stretching and even more tummy time than before at home. I see the improvements and the therapist has told me that she is very happy with his progress and he is right on pace with the other milestones like sitting, which makes me feel so much better.

We decided to design the helmet as Captain America's helmet. I really wanted it to look like some kind of a real-life helmet, not just a design (though there were some cute "fixin' my flat" designs). So I spray-painted it blue, then added the "A" and wings decals with puffy paint, and covered the whole thing with Mod Podge. I need to go over it again with a clear spray paint because the Mod Podge doesn't hold up to water the best.

To be honest, I never would have wanted all these issues, and of course prayed for a healthy baby. Between therapy, consultations, helmet fittings, and normal checkups, we have had around 15 appointments in the two months, with most of those in the last month. I'm ready to have my evenings at home back! But of course I know this is best for him, and want his little head to be round and normal like everyone else. I keep trying to trust God and look to Him for strength on those tired days. Somehow I am getting close to seven hours of sleep a night, and can make it on that much. One thing that I am really struggling with lately is keeping up with my Bible reading. It's just so hard to fit it in. I know I could read on my phone while nursing, but I just don't feel like I can focus like I should then. And with working, my evenings are  maxed out with just keeping up with dinner and chores. I'm not doing a bunch of extra cleaning or something either, just the minimum. (Like dishes get done about twice a week! Bathrooms? haha.... twice a month maybe...) We teach Sunday School twice a month, host a weekly Bible study, I try to participate in Meal Trains... I know everyone is busy, and I'm not saying mine is worse or anything. I'm just saying I'm struggling to get my Bible reading in, and it is frustrating because I have always been super consistent on reading every day. The truth is, I really miss it and long for that intimacy with God. So I am determined to find a way to make time. Maybe just 20 minutes, but I have to find a way. I need the Word. NEED it. Pray for me if you can, that I will be able to make time to read. Shoot, even writing this post takes time, which I could be reading! And I realize that, but I know several people wanted updates on Ansel, so I wanted to be able to do that for them. Sigh. Balance. It's so elusive.